Research Ethics in American Indian/Alaska Native Youth Contexts
Symposium on Thursday, September 24th in Washington, DC
1-888-244-8150 / code: 1017767
Description: Youth are a large and growing sector of American Indian and Alaska Native (AI/AN) communities, making up 42 percent of the AI/AN population nationally and 50 percent of the AI/AN population in some states like South Dakota. It is essential that research with and by AI/AN communities include youth where appropriate, to inform effective community and policy planning. And yet, the meaningful inclusion of youth in research often requires particular protocols and methodologies given their unique status as vulnerable populations and unique characteristics such as higher mobility than other populations.
1:00pm – 1:20pm Welcome and Introductions
1:25pm – 1:40pm Deana Around Him, CRCAIH Fellow at NCAI
1:45pm – 2:00pm Michelle Sarche, University of Colorado Denver (Presentation)
2:05pm – 2:20pm Teresa Brockie, National Institutes of Health (Presentation)
2:25pm – 2:40pm Catherine Burnette, Tulane University (Presentation)
2:45pm – 2:55pm Greg Tafoya, University of New Mexico
3:00pm – 3:10pm Judy Espinoza, Albuquerque Area Indian Health Board
3:15pm – 4:15pm Group Discussion
· Are there differences in research ethics when working with tribal and Native youth?
· What are key elements of a research ethics training for researchers working with tribal and Native youth?
· What tools would be helpful to develop for researchers and community leaders to improve research with tribal and Native youth?
4:15pm – 4:30pm Next Steps and Closing
NCAI Policy Research Center Partner’s Meeting
NCAI Mid Year Convention Pre-Meeting
June 17, 2013
In order to move towards the development of an Indian Country Data Strategy, the NCAI Policy Research Center convened partner organizations to coordinate efforts and identify effective approaches to measurement and policy development.
NCAI Jobs Roundtable
Embassy of Tribal Nations
May 8, 2013
Given the priorities that have emerged since the 113th Congressional Session began, it is clear that the Jobs Agenda will remain front-and-center on the political landscape, especially for Indian Country. Whether it is Green Jobs, STEM Jobs, Renewed Jobs, Veterans Jobs, or Manufacturing Jobs, there is a clear need for a comprehensive strategy that ensures Native people are a part of the national plan. The NCAI Policy Research Center hosted this initial conversation about what we can do as critical partners in moving a Jobs Agenda forward in our communities.
INTERNATIONAL INDIGENOUS SEMINARS
Professor Graham Hingangaroa Smith (Aotearoa/New Zealand) Presentation
“Transforming Indigenous Education”
Embassy of Tribal Nations
November 18, 2011
Professor Smith is of Ng?ti Apa, Ng?ti Kahungunu, Kai Tahu and Ng?ti Porou tribal descent. He serves as the current CEO/ Vice Chancellor of Te Whare W?nanga o Awanui?rangi, one of three traditional tribal institutions of higher education in Aotearoa/New Zealand, and the only one that can grant doctoral degrees. Acknowledged as the author of the goal of graduating 500 Maori PhDs in five years (between 2001-2006), Professor Smith lends insights on the incredible success of this Indigenous higher education movement, the role of Indigenous research in shaping a national economy, and cross-national development. In addition to his leadership in Aotearoa/New Zealand as a prominent Maori educationalist who has been at the forefront of the alternative Maori educational and development initiatives, Professor Smith has worked extensively with other Indigenous/ First Nation’s peoples across the world, including those in Canada, Hawai`i, US mainland, Taiwan, Chile, Australia and the Pacific nations. His presentation centered on efforts to establish an Indigenous university and language movement.
“‘You Can’t Just Dig It Up and Sell It on eBay’: Protecting Indigenous Art & Sacred Sites in the Digital Age” Seminar
Embassy of Tribal Nations
May 25, 2012
In this roundtable discussion, we will explore the digital market’s impact on the value and collection of Indigenous art, cultural regalia, and materials that showcase images of Indigenous people and/or cultural symbols. The launch of Spike TV’s reality show called American Diggers and National Geographic’s Diggers have led to a concern over looting at sites of historic and cultural significance as cast members ‘dig’ at battlefields, archaeological locations, and even sacred sites to compete to secure the largest price on online marketplaces for ‘found’ items. Featured at this session is a presentation by noted Aboriginal Indigenous Scholars Moreton-Robinson and Walter as described below:
Professor Aileen Moreton-Robinson (Quandamooka) & Professor Maggie Walter (Pymmerrairrener) Presentation (Australia)
“Aboriginalia: Collecting artefacts on Indigenous representation”
Drs. Moreton-Robinson and Walter lead a project entitled, “Aboriginalia: Collecting artefacts on Indigenous representation”, which examines how certain ‘cultural artifacts’ that have Australian Aboriginal imagery are being marketed on sites like eBay and the collectors’ market for these goods. During this presentation, we discussed the role of the Indian Arts and Crafts Act and NAGPRA in protecting cultural art, imagery, and sacred sites and to explore similar policies from Australia.
Professor Aileen Moreton-Robinson (PhD Griffith University) is a Goenpul woman from Minjerribah (Stradbroke Island) in Queensland, Australia. She has three children and four grandchildren. As Professor of Indigenous Studies at the Queensland University of Technology and Director of the Indigenous Studies Research Network she teaches the Indigenous postgraduate research capacity building program. She is author of Talkin’ Up to the White Woman: Indigenous Women and Feminism (University of Queensland Press, 2000), editor of Whitening Race: Essays in Social and Cultural Criticism (Aboriginal Studies Press, 2004), and Sovereign Subjects: Indigenous Sovereignty Matters (Allen & Unwin, 2007). She is co-editor with Maryrose Casey and Fiona Nicoll of Transnational Whiteness Matters (Lexington Press, 2009). Professor Moreton-Robinson was the founding President of the Australian Critical Race and Whiteness Studies Association (www.acrawsa.org.au). She is currently Deputy Chair of the national Indigenous Higher Education Advisory Council, which provides advice to the Australian Minister for Education. Professor Moreton-Robinson established the International Journal of Critical Indigenous Studies, which she co-edits with Associate Professor Maggie Walter.
Associate Professor Maggie Walter (PhD University of Tasmania) is a trawlwoolway woman of the pymmerrairrener nation of northeast Tasmania and a senior lecturer with the School of Sociology at the University of Tasmania. Her scholarship focus is inequality and social policy with Indigenous peoples at the centre of her research, and she teaches and publishes across these areas. Recent books include Social Inequality in Australia: Discourses, Realities and Futures (2008 Oxford University Press with Daphne Habibis) and Social Research Methods (2006; 2010 Oxford University Press). Maggie is co-editor (with Aileen Moreton-Robinson) of the International Journal of Critical Indigenous Studies, an elected member the Research Council of the Australian Institute of Aboriginal Committee Group for the large–scale national Longitudinal Study of Indigenous Children (LSIC), Footprints in Time and currently engaged in a project embedding Indigenous research methodologies into post-graduate programs in Australian universities.
Dr. Melanie Cheung (Aotearoa/New Zealand) Presentation
“Indigenous Protocols for Research on Degenerative Brain Disease”
Embassy of Tribal Nations
September 11, 2012
Dr. Cheung (Ng?ti Rangitihi, Te Arawa) is a neurobiologist with a Doctorate in Pharamacology from the University of Auckland who completed a post-doctoral fellowship with Professor Linda Tuhiwai Smith at the Te Kotahi Research Institute at the University of Waikato. She continues her work with the Centre for Brain Research at the University of Auckland.
Conference & Meeting Presentations
“Cultures’ Crossroads & the Three R’s (Return on Investment, Relevance, Relevance)”, Keynote Presentation at the Launch of the Indigenous Wellness Research Institute Center of Excellence (P60) Launch, Suquamish, Washington, May 22, 2013 (Villegas)
“Ensuring Diabetes Translation Research Makes a Difference in Native Communities”, Faculty Presentation, Association of American Indian Physicians Annual Conference, Santa Clara, California, August 3, 2013 (Villegas)
“Investing in Tribal Public Health Law”, Poster Presentation, Association of American Indian Physicians Annual Conference, Santa Clara, California, August 1, 2013 (Villegas, White Hat, Bahe)
“Data Matters in Native Contexts”, Invited Presentation, Center for Native American Youth Roundtable, Washington, DC, July 19, 2013 (Villegas)
“Tribal Public Health Law: An Essential Tool to Advance Public Health”, NIHB 2013 National Tribal Public Health Summit, Hollywood, Florida, June 19, 2013 (Villegas)
“Culture in Diabetes Translation Research: An Opportunity”, WUSTL Center for Diabetes Translation Research Scholar Seminar, St. Louis, Missouri, March 21, 2013 (Villegas)
“Health Policy from an Indigenous Lens”, Johns Hopkins Center for American Indian Health, Baltimore, Maryland, January 10, 2013 (White Hat & Villegas)
“Data Matters: Tribal Sovereignty & the Measurement of Small Populations”, Census Bureau’s Native American Heritage Month, November 14, 2012 (Villegas)
“To Benefit & Protect: Toward Principles for Ethical Data Sharing”, 2012 Health Disparities Summit, Washington, DC, November 1, 2012 (Villegas)
“Navigating Advocacy: Establishing an Agenda for Small (and Unique) Populations”, 2012 Public Health Law Conference, Atlanta, Georgia, October 11, 2012 (Villegas)
“Tribal Research Regulation: Stories from the Borderlands”, Invited Keynote Address at the International Network of Indigenous Health Knowledge and Development (INIHKD) Biennial Conference, Brisbane, Australia, September 25, 2012 (Villegas)
“Considering How Governance Matters in Research: Examples from Indian Country”, Invited Presentation at the University of Waikato Faculty of Law, New Zealand, September 21, 2012 (Villegas)
“Data Quality in the Collection and Reporting of American Indian/Alaska Native Education Data”, NCES STATS-DC 2012 Data Conference, July 12, 2012 (Ebarb & Zenone, with NIEA’s D. Mackety)
“Data Matters: Towards a National Data Quality Strategy in Contexts of Significance for American Indians & Alaska Natives”, Census Bureau Profile American Forum, National Museum of the American Indian [Launch of 2010 Census Brief on AI/AN Population], January 25, 2012 (Villegas)
“American Indian and Alaska Native Health Policy”, Johns Hopkins Center for American Indian Health, Baltimore, Maryland, January 12, 2012 (White Hat)
“Regulation Research in Tribal Communities: Tools and Training from the NCAI Policy Research Center”, The Office of Research Integrity National Conference, August 29, 2011 (Daulton, Villegas, & Sahota)