Research Partnerships (NARCH VII)
Dissemination and Implementation to Reduce AI/AN Health Disparities
In the Native American Research Center for Health (Funding Cycle VII) grant, the NCAI Policy Research Center and the University of Nevada-Reno have partnered to disseminate insights from our NARCH V project that explored the facilitators and barriers of community-based participatory research (CBPR) in tribal and minority communities, as well as to go produce new insights in three areas, including: governance, trust, and culture.
The project includes the following aims:
- Create a CBPR partnership evaluation toolkit and assess for feasibility through community dissemination.
- Revise the CBPR toolkit based on assessment of feasibility, develop a strategy for broader dissemination, and provide technical assistance to AI/AN communities on implementing CBPR best practices.
View a short video that describes this project:
The project produced the following resources:
RED Talks: Tribal Research Partnerships
With the support of Missouri Breaks Industries Research, Inc.
RED Talks are a series of video vignettes that share lessons learned from tribal-academic research partnerships. Some of the topics addressed in the video interviews include:
- Indigenous Research as Storytelling
- The Role of Partnerships
- Data Sharing among American Indians
- A Model for Tribal Academic Advancement and Building Research Capacity
Holding Space: A Guide for Partners in Tribal Research Toolkit
The CBPR toolkit, titled Holding Space: A Guide for Partners in Tribal Research, contains two resources: 1) the Holding Space Discussion Guide that focuses on the roles of governance, trust, and culture in the research process through critical discussion and interactive exercises ; and 2) the Tribal Research Future Game (see below). The toolkit is designed to support and strengthen tribal-academic research partnerships. In 2019, our team will be conducting in-person trainings with tribal-academic research partnerships to disseminate this new resource. If you are interested in this training, please contact firstname.lastname@example.org.
Tribal Research Future Game
The Tribal Research Future Game was developed in partnership wtih Future iQ, inc. and additional funding from the Center for Diabetes Translation Research at Washington University in St. Louis. The Tribal Research Future Game is an interactive game experience where players, who assume distinct roles within a tribal-academic research partnership, confront various challenges and decisions over the course of a 20-year timeframe. Decisions must be strategized together to arrive at the best outcomes for the health of the tribal community and the sustainability of the research project. The Tribal Research Future Game is conducted as a part of the Holding Space Toolkit trainings mentioned above.
The project was featured at the following events:
- 74th Annual Convention & Marketplace, National Congress of American Indians, in Milwaukee WI on October 18, 2017.
- Collaborative Research Center for American Indian Health (CRCAIH) Population Health Summit in Sioux Falls, SD on April 15, 2018. Click here to view video
- NCAI Mid Year Conference and its Tribal Leader/Scholar Forum in Kansas City, MO in June 2018.
- 2nd Annual National Native Health Research Training Conference in Prior Lake, MN on August 10, 2018.
- NCAI 75th Annual Convention & Marketplace in Denver, CO on October 22, 2018.
- Public Responsiblity in Medicine and Research (PRIM&R) Online Learning Webinar on October 10, 2018. Click here to view video
- PRIM&R's 2018 Advancing Ethical Research Conference in San Diego, CA on November 17, 2018.
The project will be featured at these upcoming events:
- Holding Space Toolkit trainings - 2019 - TBA
- Yvette Roubideaux (PI), NCAI Policy Research Center
- Julie E. Lucero (Co-PI), University of Nevada-Reno
- Amber Emerson (Project Team), University of Nevada-Reno
- Gwynne Evans-Lomayesva (Project Team), NCAI Policy Research Center
- David Beurle, Consultant, Future iQ Partners, Inc.
- Rae O’Leary, Consultant, Missouri Breaks Industries Research, Inc.
This work was supported by the Indian Health Service and the National Institute of General Medical Sciences of the National Institutes of Health under award number U26IHS0082. The Tribal Research Future Game was supported also by the Washington University CDTR's grant from the National Institute of Diabetes and Digestive and Kdiney Disorders under award number P30DK092950.
The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.